Monday, July 27, 2009


So I made an appointment to see a different eye doctor. We are going on Wednesday. It will be interesting to see what this new one says. I just left the other one feeling confused and frustrated, with no answers. You shouldn't leave a doctor's office feeling that way. I'll definitely post and let you all know how it goes!

He's also going to start PT soon. The therapist is coming over Wednesday afternoon to check him over and we will talk about goals, etc. that I want for him.

On another note, I had a physical today, and they did an EKG. It came back abnormal, so I get to go and take a stress test in a couple weeks. Yay! (Insert sarcasm) Nah, it won't be too bad. I doubt anything is wrong, but if there is, I would rather find out sooner than later!

Thursday, July 16, 2009

A little miffed...

So Joey has been having some issues with tracking objects from side to side. We know he can see, because he looks at us and smiles and stuff, and he can move his eyes up and down, just not left to right. I've been taking him to an eye doc. We had our first appt like three weeks ago and she said, well maybe hes just a bit delayed, lets give him some time to grow a bit. We weren't due back until October. But then she decides to call and make me an appointment for yesterday, so we go, and she starts wondering if maybe he has a TUMOR. I was like um, what? He had an MRI, and that was ok. So she goes off to call Radiology and they look at his MRI and see that there is nothing indicating a tumor. So she comes back and tells me this, and wonders maybe if he's had a small STROKE at some point. A stroke? What the heck. Basically she can't find any reason for this other than those things or a shunt failure, which he isn't have any signs of at all. I'm thinking she's full of it... time for a second opinion? Ugh. She ordered another MRI for him with contrast dye this time. I knew he would have another at some point - she's going to get with his neurosurgeon and see if there's anything particular he wants to be looked at so we can take care of two things at once. Ya... needless to say I'm a bit frustrated.

Thursday, July 9, 2009

My big girl!!

She's slept in her big girl bed for the past three nights! I'm so glad! Now we can start transitioning Joey into the crib, because he's getting pretty close to outgrowing his co-sleeper that's next to our bed. I took Emmy shopping so she could pick out her own bedding. They had all kinds of cute things at Walmart. Tinkerbell, Disney Princess, Flowers, Hannah Montana, and guess what she picks. Thomas the Train! Haha - she LOVES to watch Thomas. So I got it for her - I figured it would make her excited about sleeping in it. And it has! She's done so well with staying in bed once she lays down. And she's only fell out once! I tried getting a rail, but it was really cheaply made, so I'm returning it. Kind of makes me sad... my baby girl is growing up!

On another note, I haven't heard from my insurance or Duke about the cord blood infusion... ugh I sure hope my insurance will cover at least part of it.

Saturday, July 4, 2009

Happy 4th Everyone!

I hope you all have a wonderful holiday!

Friday, July 3, 2009


Well, I decided to change things around a bit in the spirit of summer. I thought I needed a nice summery background, along with a new header, which is under construction. One of these days I'll catch Joey smiling and actually have my camera in hand.

And now for a Joey update. Now that he's pooping, he is so much happier! He smiles all the time now! I love them - wide open mouthed, gummy grins! Best thing ever. So he's pooing, his vision is good, his shunt is working, and he can see! I couldn't ask for more. The lady from First Steps is coming over on Tuesday to evaluate Joey to see if he needs PT, which I think he probably will, because he can't pick his head up if it falls over. He can hold it up REALLY well, but its just so heavy that he can't stop it if it starts to fall. I know he's still young, but he's already amazed me with what he can do. He is our little miracle! I feel so blessed to have him :)