Results

Well, the EEG showed some abnormal spikes in the lower left part of his brain. So now we are the proud owners of Keppra and Diastat. He has never had a bad seizure, just little partial ones. But the neurologist seems to think he is at high risk for epileptic seizures so he wanted us to start Keppra. I hope Joey doesn't have any of the behavior side effects, he is such a happy guy and I don't want him to start being cranky or aggressive. :(

EEG

Joey had an EEG on Wednesday. The reason we did this is because he had an episode a few months back that I think may have been a partial seizure. He had been acting himself at all that day, only had like one bottle, and slept pretty much the rest of the day. That night I woke him up to get him to eat. He drank about half, and then didn't want anymore, so I didn't push it. About 15-20 minutes later, he threw up. Right after that, he went completely out of it. For about 10-25 seconds he wouldn't respond to me at all. I shook him gently, snapped my fingers, clapped my hands, all while calling his name, and he didn't look at me at all. Once he came out of it, he wasn't fussy or anything, he just fell asleep. And slept all night without waking once. So that makes me think it was a seizure of some sort. We go back to the Neurologist this coming Wednesday to get the results, so I'll update then. If any other Hydro moms are reading this, I'd love to hear your opinion on whether or not you think this was a seizure!

I have a wonderful letter written by my blogging friend Jill. She wrote a letter meant for moms who have gotten the same diagnosis as us with Hydro babies, its an amazing letter of comfort. I just wanted to share it with you here.

Well...

it's been a long time since I updated! Joey is just chugging right along :) He is doing really well in speech therapy. He has already overcome most of his feeding issues! His therapist says he is now eating just about right for where he is physically. Not crawling yet, but sitting up unassisted, and rolls around like crazy. He still hates it on his belly, so I don't know what we are going to do about crawling. Maybe he will skip it and go straight to standing and walking!

We just got back from a weekend stay in Gatlinburg in a big cabin up on a mountain. It was so beautiful! It was a 4 bedroom cabin, with a pool table, arcade games, wrap around porch, and a hot tub! My parents came, and my brother and his wife, and their kids. It was tons of fun for Emmy, she had a lot of fun playing with her cousins. My mom planned a tea party for us, it was so cute! She found some cheap play dresses and hats, so the girls loved getting all dressed up. Joey hung out with daddy and papaw and Uncle B outside, he loved it! He loves being outside!

Joey having his morning bottle with Grammy, out on the balcony.

The view of the mountains from the balcony :)

Emmy and her cousin, Marlee, all dressed up for our tea party!

Hi!

Ok, finally an update! Joey is doing great :) Still getting PT and OT, and I think we will be adding Speech Therapy because he is having some feeding issues. He doesn't like pieces of food so we are still doing baby food purees. We also have a new toy, a stander. He actually really enjoys it! He is low muscle tone and just can't seem to figure out how to make his leg muscles kick in and stand himself up. He does it in my lap sometimes, but never on his own. He is still not crawling either, but rolls all over the place. He also just had his SECOND hair cut! He has some long curly hair that I LOVE, but he gets hot really easily so we had to cut it so he would be more comfortable. He is such a happy boy :) My sweetie!

Happy Mother's Day!

May your day be blessed! Hope you all have a wonderful day filled with love and kisses from your little ones! :)

Almost time!

For my trip! I'm so excited to make one of my dreams come true. Seeing the space shuttle is something I've loved for so long. I watch every launch on NASA TV. I've always been fascinated by space related things - and now I get to go to the best place in the country to see what the US has accomplished over the years. If I could be an astronaut and go into space I would do it in a heartbeat!!!! (Not to mention that I'm getting my first mommy weekend to myself since before Emmy was born!) SO SO SO excited!!!